Chris and Cissy Larkin sat down with Houston Public Media to talk about their experience championing HB 2516 - what has become the Chris Larkin ALS Act - and the positive effects it will have on those living with ALS. Listen to the full interview and learn more about the emotional moment in the Texas Legislature that helped get the bill passed.

On May 7, 2025, the Texas House of Representatives passed HB 2516, a bipartisan bill ensuring Texans under age 65 living with ALS have access to affordable Medicare insurance. “Every day matters for those battling ALS, and this bill reflects our responsibility to act with urgency, empathy, and purpose”, commented Rep. Ann Johnson, joint author of the bill.

A new cell therapy invented by Texas A&M University School of Medicine shows strong promise in treating ALS. This will pave the way for expanding studies of treating patients with ALS with this therapy, which has been evaluated in dozens of human patients to date and shown to be safe and effective.